Post Stroke Fatigue

I remain a very loud advocate for the benefits of sleep, sleep, sleep, and more sleep interspersed with periods of learning and cognitive challenge. Jill Bolte Taylor, Ph.D. in My Stroke of Insight.

After the good news that I did not have cancer, we felt deep relief. It was a good feeling after almost three months of fight/flight mode. During those months, I was too stressed to notice the fatigue. I had more important things to occupy my mind.

I soon became aware that I felt exhausted all of the time—mind, body and spirit– even after a good night’s sleep. Rest did not take the fatigue away. Meeting someone for lunch was exhausting to think about. Other than family, I put my social life on hold. I needed my energy focused on my stroke recovery, which can take a year.

Jill Bolte, Ph.D. wrote in My Stroke of Insight:

Occasionally friends came to visit, but GG [Bolte’s mother] recognized that social exchanges used up my energy reserve and left me totally drained….She made the executive decision that getting my mind back was more important than visitation, so she stood as the guard at my door and strictly limited my social time.

Forty to seventy percent of stroke survivors experience this fatigue, and it doesn’t matter if you had a minor or a major stroke. The fatigue can pass over time; for some, the fatigue never goes away.

Working a bit in the yard would leave me spent. I couldn’t read for long, and writing left me worn out. We went to the lake this summer for a week. I felt drained by Wednesday.

The medical world does not know the cause of post-stroke fatigue. Probably it’s a mixture of physical and emotional factors. No specific medications or treatments will eliminate post-stroke fatigue. A healthy lifestyle is most likely the most one can do.

With the help of medications I usually got a good night’s sleep. Still, I remained exhausted. I had to prioritize my days and set goals mindful of my limited energy.

Jill Bolte again:

My energy was limited so we had to pick and choose, very carefully every day, how I would spend my effort. I had to define my priorities for what I wanted to get back the most and not waste energy on other things.

I made long naps (1-2 hours) a normal part of most of my days. Gradually, I am getting better at organizing my time around my energy level and setting my priorities around my overall recovery.

Jill Bolte:

For my recovery, it was critical that we honor the healing power of sleep. I know various methodologies are practiced at rehabilitation facilities around the country, yet I remain a very loud advocate for the benefits of sleep, sleep, sleep, and more sleep….

I’ve mostly made my peace with fatigue. I feel frustrated with it at times but we can adapt to our circumstances. I consider myself fortunate for being retired. I have time, flexibility, and can focus on things beneficial to my recovery. Melanie is a wonderful wife who loves me and supports me. I cannot emphasize how important a supportive spouse is in life and in recovery.

This and the previous three posts told my stroke story. I will work hard to prevent another stroke. I am grateful for no major loss of functions. I had my traumas after my stroke and they humbled me. I choose to see the strokes as a calling to greater development as a person approaching old age.

More to come.

3 thoughts on “Post Stroke Fatigue

  1. I really am sorry to read how troublesome the long-term effects have been, Tom — but I’m grateful for your courage and openness in sharing. You continue to teach us! Thank you.

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  2. I’ve known a number of people who have endured strokes, with and without debilitating symptoms, but it was only your story that educated me on the fatigue that accompanies strokes of any level. Thanks so much, Tom, for sharing your tale with us. Sleep away, my friend. May the world be a better place when you awake!

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